Michigan scleroderma foundation to hold awareness walk at Island Park
Island Park consists of several trails and walkways, as it is an actual island surrounded by the Chippewa River.
The National Scleroderma Foundation’s Michigan Chapter announced its inaugural Stepping Out Mt. Pleasant walk. The event will start at 12 p.m. on April 22 at Island Park.
Registration will begin at 11 a.m. and costs $35. According to Stepping Out to Cure Sclerodmera, The walk is intended to raise awareness about scleroderma, a rare autoimmune disease that affects a small percentage of the population. The event is being held in memory of Jacob Davila, who died in 2021.
According to the American Academy of Dermatology, scleroderma is characterized by the hardening and tightening of the skin and connective tissues, which can cause problems in the internal organs, blood vessels and muscles. The disease can also cause fatigue, joint pain and muscle weakness, making it difficult for patients to perform day-to-day activities.
During the walk, there will be a one-hour fellowship activity where attendees can register and learn about support groups, advocacy and research. Children's activities, such as games and coloring, are also available during registration.
According to Randall Slikkers, executive director of the Michigan NSF chapter, the foundation averages over $2 million annually to support scleroderma researchers
Peggy Collins, who has scleroderma and is the NSF advisory committee chair, said the event is important for supporting people with the disease.
"The walk is a step towards bringing attention to the unique challenges faced by individuals with scleroderma and their families," Collins said.
Slikkers said NSF hopes to continue providing education, support and research opportunities to improve the lives of those affected by the disease. Their fundraising goal of $10,000 will be used to provide education, support groups, and research for patients with scleroderma.
Michael Bessert, who also lives with scleroderma said a positive attitude is important for surviving the disease.
"I have learned that the power of the mind is stronger than the power of the disease," Bessert said. "Being positive is the key to living life to its fullest with scleroderma."
